“What when we have grown up?” dives into Marieke Vandecasteele’s doctoral research trajectory in a space between art and science. From her own position as a family mem­ber, the researcher starts to collect experiences of families of people with a label and makes trips to others who made visual or auditory creations about their sibling with a label.

This book is a patchwork consisting of ‘patches’ rather than ‘chapters’, where different studies are stitched together. These patch...